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Author Topic: Fibromyalgia  (Read 2684 times)
Advice appreciated
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« on: 23 December 2008, 0:01:59 AM »
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I can't take it anymore. For about two years I have had this nagging feeling that something is wrong with me, but I can't put my finger on it. It's a general all-over aching of my body, pain in my joints, stiffness, fatigue that drifts from moderate to severe, and oftentimes a complete inability to focus on serious tasks.

I feel miserable about 50 percent of the time, but have not considered seeking medical help because my symptoms drift in and out and are hard to pinpoint. I also hate to be seen as a complainer, so most days I just shut up about it and do my best to muddle through.

But today I just can't take it anymore. I googled some of my symptoms and came up with Fibromyalgia.

Far be it for me to self-diagnose using the Internet. It's just an idea whose symptoms seem to fit mine rather well. But has anyone heard of this. Has anyone had this? How were you diagnosed? What therapies did you try? How successful have you been to manage this condition?

I understand there's controversy surrounding the diagnosis of this condition, and varying treatments, and I welcome any personal anecdotes and recommendations. I do not descriminate between experiences with conventional medicine and alternative forms, if your experience has been in either sphere I welcome your thoughts.

I think after the first of the year I will pursue this with a specialist to see if I am close to uncovering the mystery behind my misery.

Thank you, in advance, for your input.
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not fun
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« Reply #1 on: 23 December 2008, 0:25:39 AM »
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One of our kids was diagnosed with this by a neurologist after having lots of mycoplasma infections and developing severe headaches and the other symptoms you describe. The doc used a combination of medical history, examination and a pressure points test to reach this conclusion. He described it as being like ME with added pain. There doesn't seem to be a cure-all treatment. We have tried a mix of conventional medicine, physiotherapy to improve the stiffness, living and eating as healthily as possible, exercise to keep fit when he has good days, letting him rest on bad days. The worst thing, as you say, is the vague nature of the fatigue, muscle pain and not being able to think that comes and goes. Tell your doc how bad you feel, maybe keep a diary first so you can show how much this is affecting your life and see what your doc suggests.
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success
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« Reply #2 on: 23 December 2008, 6:33:34 AM »
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Hi I started to have the symptoms 2.5years ago. I too did the same as yourself and diagnosed myself over the internet. I totally understand what you are going through. To me fibromyalgia is a big word and not easy to diagnose by GP's. Its not like looking at a cut because its from the inside of your body. I used my own strategy to overcome it and now I am much better though it comes and goes but not so much pain nowadays. my physio helped me through and we worked out a plan which really helped. apart from daily stretching, its really very simple. goes like this. Walk half an hour each day, this helps the good hormones to get going and give you a feel good factor, also massages muscles in your body.It also aids sleep which is the most important to cure you. If you are tired with exhaustion from physical activity. start with 15mins first and then slowly build it up. If you get muscle tightness which does not go away, use painkiller meds to settle it down for at least 3-5days. use the gym, only the walking machine and the ski walker for 20-30mins. You really need to keep motivated and have a positive outlook. the physio can help you achieve this. I was recently diagnosed by a doc in singapore with the condition and he gave me medication but it came late by now I have successfully treated myself and have it under control. hurray. Its difficult with family as they dont really understand what is going on. I would be interested to hear from anyone who has other success stories and more tips. I have come out stronger as a person because I battled with it for so long. start a journal and write down each time you feel its triggered off. then you can use the info to help yourself. I would recommend an aussie or NZ physio but I dont have one in singapore.
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Advice appreciated
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« Reply #3 on: 23 December 2008, 12:18:10 PM »
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Thank you so much for your replies. I have a lot to think about and from the sounds of it I'm looking forward to a journey rather than a fix.

I am now faced with another dilemma. I've contacted a private neurology clinic as well as a public one. The private one charges S$125-250 for 1st consultation, follow-up consultation fees are from S$85-150. The receptionist said that I can expect tests, the most costly one is the MRI, which she estimates at S$600.

The public clinic charges consultation at S$95, but estimated the MRI to be upwards of S$1,000, and a nerve test between S$350-500.

So, 2020, your advice is timely to investigate other options before I sign up for almost 1,500 dollars worth of diagnostic tests.

The sad thing is this has pointed out a glaring gap in my healthcare insurance coverage. I'm here with my own business, on entrepass and since I'm relatively young, I have only provided for accident and emergency insurance. I do not have general health insurance that would cover the outpatient consultations and tests to cover this kind of investigation.

So, I can go out and buy some health insurance and then begin the process to discover the source and treatment of my illness, or I can submit the PR application that's been sitting on my desk for the past year and hope I get approved in three-plus months so I can afford to go through the public system at subsidized rates.

What a nightmare. So now, before I can even pursue the problem at hand I have to solve the logistical problem beforehand. I'm feeling a little bit overwhelmed at the moment, so think I need to meditate on this a bit.   
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krazy
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« Reply #4 on: 26 December 2008, 11:13:39 AM »
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i had the same aches and pains. pain from a little bump would seem to take minutes to subside.

saw a gp then a neurologist who quickly diagnosed fibromyalgia.

essentially the 'pain volume' in your brain is turned up a little loud - impacting particularly cronic type pains.

i was given a does a light anti-depressants - which works by turning the volume down. the drugs were horrible - felt like a zombie, but it was a few weeks and it did work. that was a few years ago. i can feel it coming back a bit - doctor said it can work in waves of intensity over time.

basically i think exercise, particularly yoga, swimming, pilates etc helps a lot.

i don't think you need the mri's etc. if you can get a referal to a neurologist they should be able to do a 15 point 'pich' test that will diagnose it. all up it cost me a gp visit and a 2 specialist visits (and the drugs).

apparently human growth hormone helps - but i haven't looked into that.

the specialist i saw was at raffles hospital.

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Seb
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« Reply #5 on: 27 December 2008, 13:56:48 PM »
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I would suggest that you see your GP first for a few blood tests to see if you have an auto immunity problem and then consider a specialist. There a similar conditions which you will need to investigate including Lupus or SLE.  There is a rheumatic centre at Mount Elizabeth and the Consultant was very good and not expensive for a first visit.

Wishing you good health for 09!
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What's in a Name?
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« Reply #6 on: 04 January 2009, 19:11:39 PM »
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Agree with the posters who say you do not need expensive MRIs and so on - a good doctor or osteopath will know how to do the points test.  Also agree that you should have blood tests to rule out other autoimmune problems.  I'm a member of a Thyroid forum and most of the sufferers have joint pain, myself included.  Food intolerances can also play a part.

I was diagnosed with fibro but honestly to me it's just a name and part of an autoimmune disorder that I need to treat as a whole.

If you get diagnosed and want to read further, you will find some good books on autoimmune disorders in Kinokuniya.
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Kate Porter
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« Reply #7 on: 21 March 2009, 18:15:42 PM »
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Hello, 
I suffer from Fibro and Systemic Lupus and was diagnosed about 8 years ago. There is a wonderful specialist at the National University Hospital  The consultation is under $60.

Good luck and keep smiling,
Kate
« Last Edit: 21 March 2009, 18:34:20 PM by BoardManager » Logged
Korika Eunos
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« Reply #8 on: 01 October 2018, 14:22:59 PM »
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Tried a full body massage by a master and it works.
Contactable at [email protected]
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